Seven year old Jamie from Loxton North has an undiagnosed syndrome. Since the age of 6 months this young girl and her family have travelled to see numerous specialists for much needed investigation and treatment. Jamie has severe intellectual disability, severe Myoclonic Absence Epilepsy (was originally having up to 2000 seizures a day and now nearly none) Ataxic Cerebral Palsy, Sensory processing dysfunction, unable to speak and doesn^t understand most of what is said to her. She has to be fed through a PEG and has recently been hospitalised due to hematemesis.Angel Flight took her to Adelaide as the Paediatricians in Adelaide needed to see her again to further investigate this bleed.
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